Detalhe da pesquisa
1.
Intranasal fentanyl and discharge from the emergency department among children with sickle cell disease and vaso-occlusive pain: A multicenter pediatric emergency medicine perspective.
Am J Hematol
; 98(4): 620-627, 2023 04.
Artigo
em Inglês
| MEDLINE | ID: mdl-36606705
2.
Parental perspective on the risk of infertility and fertility preservation options for children and adolescents with sickle cell disease considering hematopoietic stem cell transplantation.
Pediatr Blood Cancer
; 70(7): e30276, 2023 07.
Artigo
em Inglês
| MEDLINE | ID: mdl-37051746
3.
Multimodal phenotyping and correlates of pain following hematopoietic cell transplant in children with sickle cell disease.
Pediatr Blood Cancer
; 70(1): e30046, 2023 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-36322607
4.
Decision-making about gene therapy in transfusion dependent thalassemia.
BMC Pediatr
; 22(1): 536, 2022 09 09.
Artigo
em Inglês
| MEDLINE | ID: mdl-36085025
5.
Characterizing User Engagement With a Digital Intervention for Pain Self-management Among Youth With Sickle Cell Disease and Their Caregivers: Subanalysis of a Randomized Controlled Trial.
J Med Internet Res
; 24(8): e40096, 2022 08 30.
Artigo
em Inglês
| MEDLINE | ID: mdl-36040789
6.
Primary caregiver decision-making in hematopoietic cell transplantation and gene therapy for sickle cell disease.
Pediatr Blood Cancer
; 68(1): e28749, 2021 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-33034129
7.
The burden of respiratory syncytial virus infections among children with sickle cell disease.
Pediatr Blood Cancer
; 68(1): e28759, 2021 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-33034160
8.
Educational needs of patients and caregivers living with sickle cell disease results in development of web-based patient decision aid.
J Adv Nurs
; 77(3): 1432-1441, 2021 Mar.
Artigo
em Inglês
| MEDLINE | ID: mdl-33277763
9.
Microbiology and radiographic features of osteomyelitis in children and adolescents with sickle cell disease.
Pediatr Blood Cancer
; 67(10): e28517, 2020 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-32710705
10.
Influenza vaccine effectiveness and disease burden in children and adolescents with sickle cell disease: 2012-2017.
Pediatr Blood Cancer
; 67(8): e28358, 2020 08.
Artigo
em Inglês
| MEDLINE | ID: mdl-32469138
11.
Patient and family experience with chronic transfusion therapy for sickle cell disease: A qualitative study.
BMC Pediatr
; 20(1): 172, 2020 04 18.
Artigo
em Inglês
| MEDLINE | ID: mdl-32305060
12.
Bone marrow transplantation for adolescents and young adults with sickle cell disease: Results of a prospective multicenter pilot study.
Am J Hematol
; 94(4): 446-454, 2019 04.
Artigo
em Inglês
| MEDLINE | ID: mdl-30637784
13.
Incidence of invasive Haemophilus influenzae infections in children with sickle cell disease.
Pediatr Blood Cancer
; 66(6): e27642, 2019 06.
Artigo
em Inglês
| MEDLINE | ID: mdl-30724001
14.
Comparative Effectiveness of a Web-Based Patient Decision Aid for Therapeutic Options for Sickle Cell Disease: Randomized Controlled Trial.
J Med Internet Res
; 21(12): e14462, 2019 12 04.
Artigo
em Inglês
| MEDLINE | ID: mdl-31799940
15.
Experiences and Decision Making in Hematopoietic Stem Cell Transplant in Sickle Cell Disease: Patients' and Caregivers' Perspectives.
Biol Blood Marrow Transplant
; 24(5): 1041-1048, 2018 05.
Artigo
em Inglês
| MEDLINE | ID: mdl-29196076
16.
Safety of intravenous arginine therapy in children with sickle cell disease hospitalized for vaso-occlusive pain: A randomized placebo-controlled trial in progress.
Am J Hematol
; 97(1): E21-E24, 2022 01 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-34724240
17.
Adherence to NHLBI guidelines for the emergent management of vaso-occlusive episodes in children with sickle cell disease: A multicenter perspective.
Am J Hematol
; 97(11): E412-E415, 2022 11.
Artigo
em Inglês
| MEDLINE | ID: mdl-36054566
18.
A cognitive-behavioral digital health intervention for sickle cell disease pain in adolescents: a randomized, controlled, multicenter trial.
Pain
; 165(1): 164-176, 2024 Jan 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-37733479
19.
Sex and frequency of pain episodes are associated with acute pain trajectories in adolescents with sickle cell disease.
Pain Rep
; 8(5): e1084, 2023 Sep.
Artigo
em Inglês
| MEDLINE | ID: mdl-37559677
20.
Sickle Cell Disease Treatment with Arginine Therapy (STArT): study protocol for a phase 3 randomized controlled trial.
Trials
; 24(1): 538, 2023 Aug 17.
Artigo
em Inglês
| MEDLINE | ID: mdl-37587492